Stronger Together
Voluntary organization for people interested in Hemophilia and von Willebrand disease. Our mission is to inform members about everything that interests them and defend their needs.
Together Stronger
Jested Meetup, 2025
In the Spotlight
podcast
Podcast - Life of a Haemophiliac in the Mirror of Modern Medicine
In this episode of the Na vlastní žíly podcast, host Michal Bereň, together with Dr. Radomíra Hrdličková, a leading haematologist from the University Hospital Ostrava, brings a new perspective on life with haemophilia. They discuss the latest treatment methods, prophylaxis, ultrasound examination of joints, and provide practical advice for patients and their families.
léčba
Gene Therapy - A Practical Guide
We bring you a new publication—a translation of a practical guide on gene therapy published as part of the EHC’s editorial activities.
News
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ERIN Summit 2026 in Prague: an opportunity for people with rare bleeding disorders
05/08/2026This December, Prague will host the European ERIN Summit for people with haemophilia and inhibitors and extremely rare bleeding disorders.
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New members portal — profile, discussions and fees in your browser or as an app
07/04/2026We have launched the CSH members portal — it works in any browser on your computer or phone, and on mobile you can also add it to your home screen as an app.
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We will celebrate World Hemophilia Day with a hike to Zvičina
10/03/2026Following last year's successful hike to Ještěd, we continue the tradition of outdoor gatherings. This year we head to the Krkonoše foothills to climb Zvičina on the occasion of World Hemophilia Day. The event takes place April 10–12, 2026 with accommodation in Velichovky Spa.
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Summer Haemophilia Camp 2026
04/03/2026The 2026 Summer Haemophilia Camp will traditionally take place at our tried-and-tested and popular Jasenka Recreation Centre in Zubří in the Vysočina Highlands from 19 July to 31 July 2026.
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Seventh CSH and Hemojunior Gala Evening at Hotel Juliš
16/02/2026On Saturday 14 February, the seventh annual gala evening of the Czech Haemophilia Society and Hemojunior took place, this time at Hotel Juliš on Wenceslas Square in Prague. Approximately 80 guests attended the event.
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Annual Award of ČSH and Hemojunior
16/02/2026At this year's gala evening in Prague, we had the great honour of recognising our long-standing member Mr Zdeněk Březina, who was presented with the Annual Award of the Czech Haemophilia Society and Hemojunior.
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What is Hemophilia and Von Willebrand Disease?
Hemophilia and von Willebrand disease are rare genetic disorders where blood clotting doesn't work properly. While they present challenges, modern medicine and a strong community enable patients to live fulfilling lives.
Explanation of genetic inheritance
Latest treatment and prophylaxis options
Comprehensive care centers in the Czech Republic